The Institut de recherches cliniques de Montréal (IRCM) / Montreal Clinical Research Institute Foundation is pleased to announce a donation of $1 million from the Œuvres du Docteur Roch Despatis to create a chair for the Research Centre for Rare and Genetic Diseases in Adults. This announcement was made during the inauguration ceremony for the institute’s Primary Immunodeficiency Clinic.
Roland Pillenière, Chairman of the Œuvres du Docteur Roch Despatis, spoke of Dr. Roch Despatis’s commitment and devotion to research. “As a visionary, whose wish it was to help the most vulnerable patients, Dr. Despatis would be extremely proud of this innovative project at the IRCM.”
“This donation intended for the new Research Centre for Rare and Genetic Diseases in Adults by the Œuvres du Docteur Roch Despatis, created in memory of Dr. Despatis, is a sign of great generosity. I am delighted with the creation of this chair, which will have a major impact on patients,” stated André J.P. Couillard, President of the IRCM Foundation.
“I wish to thank Mr. Roland Pillenière, Chaiman of the Œuvres du Docteur Roch Despatis, for this important and timely donation,” added Tarik Möröy, the IRCM’s President and Scientific Director. “This financial support for the Research Centre for Rare and Genetic Diseases in Adults will allow us to create a laboratory where work will be carried out to better understand these diseases and, as a result, develop new treatments. The opening of the Primary Immunodeficiency Clinic, led by Dr. Hugo Chapdelaine, is also a step in the right direction.”
“Thanks to research, adult patients with primary immunodeficiency are living longer and longer,” concluded Dr. Hugo Chapdelaine. “Now, the challenge is to continue making scientific breakthroughs by working in partnership with various parties, as is suggested by the IRCM’s initiative and the donation from the Œuvres du Docteur Roch Despatis.”
Initiative on the Research centre on rare and genetic diseases in adults
A growing number of patients are now reaching adulthood, but a substantial void exists in the healthcare system in regards to the management, monitoring and care of these patients who must leave the pediatric environment.
To address this alarming situation, the IRCM is proposing to establish on its premises a Research centre on rare and genetic diseases in adults. Drawing on its exceptional strengths in clinical and basic research, this new centre will be the only one of its kind in Canada and will allow the institute to position itself as a national leader.
In addition to providing access to specialized care, the initiative will lead to the development of a model for clinical follow-up to ensure the transition from pediatric to adult care. Furthermore, this initiative will not only allow the institute to conduct research on rare diseases, but will become a central component of the translational research program required to better understand these diseases and, as a result, develop new treatments. To support this initiative, the IRCM is establishing three important partnerships with the CHU Sainte-Justine university health centre, the Centre hospitalier de l'Université de Montréal (CHUM), and the Quebec Coalition for Orphan Diseases (Regroupement québécois des maladies orphelines).
About the IRCM Foundation
The Institut de recherches cliniques de Montréal (IRCM) / Montreal Clinical Research Institute Foundation is one of the Institute's key partners. Through the tremendous efforts of people committed to IRCM's present and future, the Foundation can fulfill its mission of supporting IRCM's research, technological development and training activities, promoting its growth.
About the IRCM
Founded in 1967, the Institut de recherches cliniques de Montréal (IRCM) / Montreal Clinical Research Institute is a non-profit organization that conducts fundamental and clinical biomedical research in addition to training high-level young scientists. With its cutting-edge technology facilities, the institute brings together 33 research teams, which work in cancer, immunology, neuroscience, cardiovascular and metabolic diseases, systems biology and medicinal chemistry. The IRCM also operates a research clinic specialized in hypertension, cholesterol, diabetes and cystic fibrosis, as well as a research centre on rare and genetic diseases in adults. The IRCM is affiliated with the Université de Montréal and associated with McGill University. Its clinic is affiliated with the Centre hospitalier de l’Université de Montréal (CHUM). The IRCM is supported by the Ministère de l’Économie, de la Science et de l’Innovation (Quebec ministry of Economy, Science and Innovation).